Dementia Support & Resources
Understanding more about Alzheimer's and other dementia-related diseases, knowing what to expect, and learning what you can do can truly make a difference in a caregiver’s well-being and the well-being of the person you are caring for.
Online Support
Dementia Society of America
Dementia Society of America® (DSA) is the nation’s leading volunteer-driven all-Dementias awareness organization. DSA provides an information request hotline (1-800-DEMENTIA®), many online resources, and an easy-to-use, web-based locator, which can help families and individuals find valuable support near them.
Book Resources
Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer's disease to focus more of our energies on creating moments of joy. Creating Moments of Joy is filled with more practical advice sprinkled with hope, encouragement, stories, and generous helpings of humor. Brackey reveals that our greatest teacher is having cared for and loved someone with Alzheimer's and that often what we have most to learn about is ourselves.
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Loving Someone Who Has Dementia is a new kind of caregiving book. It's not about the usual techniques, but about how to manage on-going stress and grief. The book is for caregivers, family members, friends, neighbors as well as educators and professionals—anyone touched by the epidemic of dementia. Dr. Boss helps caregivers find hope in "ambiguous loss"—having a loved one both here and not here, physically present but psychologically absent.​
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This candid memoir is not another to-do list or dementia caregiver's guide. Instead, it is a real-life love story, demonstrating a way of living that:
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redefines caregiving,
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dismisses the "tragedy talk,"
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maintains identity and relationships, and
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finds possibilities and hope in the mist of adversity.
Being on the other side of a progressive disease can leave you feeling alone, without a compass, and struggling to maintain a mindset of possibilities. Myrna introduces two questions you can ask yourself to help find moments―or even years―of meaningful life through dementia:
How do you want to live each day?
How do you want to feel in the end?
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Still Alice is a compelling debut novel about a 50-year-old woman's sudden descent into early onset Alzheimer's disease, written by first-time author Lisa Genova, who holds a Ph. D in neuroscience from Harvard University.
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Podcasts
When a loved one has dementia, it can be a lonely and uncertain experience. Listening to others' stories and insights can provide comfort and understanding. Our team has gathered a selection of resources for you to offer support during this difficult time.
More Resources Coming Soon!